Providing Care No Matter Where You Call Home

For most people, calling Hospice to care for a loved one is a decision fraught with emotion. For Loretta Olson, it was a decision she faced twice in one year.

Loretta describes her father, Herman, as a determined and independent man. When he received a cancer diagnosis, it was understandably devastating. As his health deteriorated, Herman understood he could no longer stay on his farm alone, and agreed to move in with Loretta.

“I told him I wasn’t a nurse, and I knew we needed additional help. That is the main reason we decided to call Hospice.”

Soon after making the call, Loretta found herself sitting around the table discussing end-of-life care with her father and a Hospice staff member. “Although I had asked my father some questions about his wishes for care at the end of life, the representative from Hospice knew all the right questions to ask,” Loretta shares.  “She got all of my father’s answers in writing.”  For Loretta, it was reassuring to have her father making his care decisions and signing his name to the documents.

Loretta remembers the comfort her father found in the special care he received. She recalls her father talking on the phone with friends, asking if they had a nurse or a hospital bed, because he did.

“‘I got ‘er made,’ Dad would say,” recalls Loretta, “He never complained.”

Loretta remembers how the Hospice nurses bonded with her dad, even taking special care to talk slowly and loudly because he was hard of hearing. It was comforting to have them care for her father.

A wall displays photos of Loretta’s father.

Prior to her father’s experience, Loretta admits she did not know very much about the depth of services provided by Hospice. “They do so many things you may not think of,” Loretta says. “It’s just unbelievable. I can’t say enough good things about it. They treat people with such decency.”Loretta was grateful for the chance to care for her father in her home. However, as her father’s condition declined, the family decided her father’s around-the-clock personal care needs necessitated a move into a nursing home.

“So many people I speak with don’t realize Hospice provides care in a nursing home or other facility,” says Loretta. “With my father, Hospice was there for us in both settings in equally important ways. I was so glad to have a seamless transition between the care he received at home and the care he received in the facility.” After six weeks in the nursing home, Herman passed away in September of 2010 at the age of 89.

Just as the anniversary of her father’s death approached, Loretta and her family faced another tragedy; her mother, Donna, was diagnosed with cancer in August of 2011. Soon, doctors told her the disease was at an incurable stage. This time, Loretta had no hesitation about calling Hospice.

“At the time we called Hospice, Mom was in the hospital in Fargo,” explains Loretta. “Just as they had been there for Dad in both the home and nursing facility setting, they were there to care for Mom in the hospital.” Donna spent the following month in and out of the hospital, but, as Loretta recalls, “Hospice was there every step of the way.” Eventually, Donna was able to leave the hospital and enter a nursing home under the care of Hospice. She died in September at age 80.

Besides helping her parents in those last few months of life, Loretta was also impressed with the services Hospice of the Red River Valley provided for the family. In addition to one-on-one education from the Hospice staff, the family received a handbook explaining the different occurrences during the last stages of life. “They have it down,” Loretta says, impressed by how Hospice communicated what her parents would experience until they took their final breaths. They also prepared the family for life after their loved one’s deaths by providing grief support and resources. Her granddaughters even participated in a special bereavement program for children.

Reflecting on her family’s experiences, Loretta now finds herself educating others about the care Hospice provides in so many different settings—the home, the hospital or the nursing home/assisted living facility. “I tell everyone—don’t hesitate, just make the call. Hospice is there to help.”

 

 

Leaving a Legacy

“With my limited income, how can I support Hospice even more?”

Meet Charlotte, a charming, vivacious 91-year-old woman living independently in Detroit Lakes, Minnesota surrounded by friends and a few close relatives in the community she has always considered home. Charlotte has always been a planner and continues to make deliberate plans now in her retirement with the same forward-looking attitude that helped build her career.

As a young woman, Charlotte moved to Washington D.C. She lived just eight blocks from the White House and worked with an attorney who pioneered the urban renewal process. Despite the challenges and discrimination working women often faced, Charlotte had an impressive career at the Urban Redevelopment Agency. After her manager was promoted, he nonchalantly informed her she was going to take on his work with rehabilitation loan settlements—a challenge she gladly accepted.

In 1982 Charlotte retired and spent time traveling, including a memorable three weeks she spent in China. Eventually, she made her way back home to Detroit Lakes where she has since enjoyed her retirement.

Charlotte’s home is tidy; collections from her travels and samples of her handiwork are displayed throughout her home. She collects hats; her last acquisition was a black fedora purchased a few months ago in celebration of her 91st birthday. She is active in her church and has a full calendar with quilting, knitting hats for newborns and enjoying time with friends. Charlotte smiles as she explains she even does “community service” in her apartment building. “If I am the first one up I will deliver the newspapers to all my neighbors.” she says.

Like so many others, Charlotte has to closely manage her income, which has meant limiting her charitable giving to memorial gifts. However, after witnessing the compassionate care given by Hospice of the Red River Valley to a family member, Charlotte felt compelled to take another look at her giving. She wondered, “With my limited income, how can I support Hospice even more?”

Her thoughts turned to her life insurance policy. Charlotte’s chosen beneficiaries were young, successful family members who didn’t need her support. And, she had some clear ideas about what she wanted to do to support the causes most important to her. After careful consideration, Charlotte decided to become a member of the Legacy Society by changing her beneficiaries to Hospice of the Red River Valley and three other non-profit organizations. “There will always be a need for hospice services and I want to help make sure they are there to serve,” Charlotte explains.

Charlotte’s church is another beneficiary on her policy. In fact, she has some very specific thoughts on how she wants to help her church—she wants the funds to go to general maintenance for the building, rather than future projects.

Charlotte’s future gifts are generous, thoughtful and practical—a perfect reflection of her life. What do you want your gifts to reflect? Take the first step in planning your future gifts by visiting www.hrrvgifts.org to view a demonstration of a future or planned gift based on your own personal situation.

Committing to a Cause

Dave and Emily (Atchison) Gess were married in October of 2008. That alone is not unusual; what is unusual is the fact that they wanted to include supporting a non-profit organization as part of the wedding. Before they were married, both Dave and Emily had a grandfather who was served by Hospice of the Red River Valley. Emily thoughtfully stated, “I couldn’t imagine my grandpa not being at my wedding!”

It was tough to accept that neither of these men would be there as the plans for the wedding were coming together. Rather than simply grieve their loss, they decided to commemorate their beloved grandfathers at their wedding in a unique way. They chose to make a donation to Hospice of the Red River Valley instead of putting party favors on the table for their guests. In place of the traditional party favor was a small table tent indicating their intentions. The emotional value Dave placed on their donation was evident when he said, “It meant so much more to us than a little charm. We wanted to give back to an organization that has touched our lives.”

Giving is something that the Gess’ want to make as a regular part of their lives. Not only did they decide to support Hospice of the Red River Valley the day of their wedding, they have decided to begin a tradition by making an annual donation on their anniversary in memory of their grandfathers. “This is one way we can develop good habits,” comments Dave. That’s when Emily proudly stated, “Some day when we have children, we want them to realize that giving to charity is a normal part of our lives.”

They both talked about the fact that the dollar amount is not what matters; that it really comes down to taking action and choosing to support something a person believes in. Emily reasoned that “If everyone gives a little, it goes a long way. Right now this is what we can do. As our income hopefully goes up,” she says with a laugh, “Our giving can go up as well.” Emily’s last comment was one that maybe says it best, “If we can encourage just one person to give by our example, then our gift goes that much further.”

Sharing the Last Journey

“The love they shared and demonstrated was unbelievably strong—a relationship many people had never witnessed.”

“We have talked, and we have prayed we will be able to leave this earth together.”

Irvin and his wife of 69 years, Cora, shared this decision with their daughter, Pat, several times during the last months of their lives.

Irvin and Cora’s love story began like many others. After meeting on a double date, they married on December 20, 1941 in Halstad, Minnesota. Together they raised two children, daughter Pat and son Jerry.

Pat remembers fondly how tight-knit and special her parents’ relationship was, filled with love for one another, and for others. “My Dad often said, ‘we’ve never known any strangers,’” recalls Pat with a smile. “Even at the age of 96, they were still adding new friends to their Christmas card list.”

Irvin and Cora remained remarkably independent into the late years of their lives, which Pat attributes to the support they provided one another. “My parents did everything together—through times of good health and declining health,” Pat says. “When one was not well, the other was able to provide the strength to keep them as independent as possible. “

Irvin’s first hospitalization was at 85 years old; while Cora’s first major health issue occurred at age 89. However, Cora and Irvin continued to live quite independently until the last two years of their lives, when more assistance became necessary. “Their caregivers often told me, ‘you never have a bad day when caring for Cora and Irvin,’” remembers Pat. “The love they shared and demonstrated was unbelievably strong—a relationship many people had never witnessed.”

In July 2010, Cora was hospitalized for a heart condition. Her physician was very direct, telling the family Cora’s condition was irreversible.

“While we somewhat expected to hear our 95-year old mother was in a fragile state, hearing she had two months to live was a shock,” recalls Pat. The physician recommended hospice care.

Cora began receiving care from Hospice of the Red River Valley. At the time, Cora and Irvin were living at a long-term care facility in West Fargo. The family was pleased to learn another move would not be necessary, and that Hospice provided care right where Cora and Irvin called home.

Still, the idea of losing their mother, and their father losing his wife of 69 years, was difficult for Pat and her brother. “We didn’t know what or how to tell Dad,” she remembers. “We appreciated the support and assistance Hospice provided to make the discussion easier for my Dad, and our entire family. “

Pat fondly recalls the attentive care her mother received during her months on Hospice care. Irvin, in fact, was so pleased with the care Cora received from volunteers, CNAs, social workers, chaplain and nurse; he asked if he might receive the same attention.

Initially, Irvin didn’t meet the medical guidelines for Hospice services, despite his age of 96. However, two months later a second evaluation confirmed his medical conditions made him eligible.

“He was so happy to be able to share the same caregivers with Mom,” Pat remembers. “Now, through Hospice care, they were able to share the same experiences, just as they had throughout their lives together.”

Despite her original prognosis, Cora surpassed her physician’s expectations. “Even after eight months, there was no change in how Hospice caregivers responded to her needs,” Pat says.

The last few weeks of her parents’ lives Pat describes as a roller coaster, “One day Dad would be weaker and Mom would be stronger, and the next day or week the situation would be reversed.”

Even during the chaotic final weeks of their lives, Pat cherished that her parents’ continuum of care was never compromised, even when Cora’s condition required a higher level of care with a nurse at the bedside 24 hours a day.

Pat recalls how supportive their nurse, Derek, was of her parents. “When it was evident Mom’s journey was coming to an end, Derek explained to Dad what he could expect. He encouraged Dad to continue to talk to Mom and reach out to her as they had all their married life. When Derek asked Dad if he had any questions or concerns, Dad’s comment was, ‘I guess I will just have to hang on the best I can. I always thought I should go first.’ Derek made Dad comfortable, so he could say what was on his mind in his own stoic, Norwegian way.”

The last chapter of Irvin and Cora’s 69-year love story closed on April 10, when Cora passed away with Irvin’s hand on hers. Irvin closed his eyes as Cora took her last breath. “Dad did not respond when we told him Mom had passed. He never reopened his eyes, nor did he say another word,” Pat remembers.

Irvin died just six days after his beloved wife, on April 16. As a way to commemorate their relationship, the family decided on a joint obituary and funeral for both Cora and Irvin. “After all, they did basically leave this earth together,” Pat explains.

With the help of Hospice, Cora and Irvin’s end-of-life journey allowed them to maintain their dignity in a peaceful and comfortable manner, never compromising their close relationship.

“Hospice was very supportive, kept us informed of the changes, and treated our thoughts and concerns with respect and reassurance of what to expect,” Pat explains. “Most importantly, rather than centering our thoughts on only the dying process, Hospice was respectful of our request to concentrate on celebrating my parents’ lives, and their love.”

Fear of the Unknown

When Lori, the hospice nurse, came on the first day Phil and Karen thought she was pleasant. By the time she left that day, they thought she was pretty. When it was all over, they thought she was beautiful, with an inner radiance.

Fear of the unknown – who hasn’t felt wary when facing a road filled with uncertainty? Phil Hanson traveled this road after being diagnosed with lung cancer. Although Phil didn’t know what lay ahead, he instinctively knew that his disease was terminal. Yet he pursued trial treatments, not because he felt confident in a cure, but rather because he knew his results may someday help someone else.

There came a point during these trials when Phil stopped and asked the critical question, “Shouldn’t I be on hospice care?” His doctor agreed and Hospice of the Red River Valley was called to his seasonal home on Cotton Lake, where he and his wife Karyn lived during the summer months.

A Guide for the Road Ahead

Lori was assigned as Phil’s hospice nurse. Karyn describes her this way, “When Lori came on the first day we thought she was pleasant. By the time she left that day, we thought she was pretty. When it was all over, we thought she was beautiful, with an inner radiance.”

Lori and Phil bonded right away. Karyn says, “Phil loved Lori because she offered him exceptional care and respected his dignity.” Lori had earned both Phil and Karyn’s trust.

Before one of Lori’s visits Karyn noticed that Phil wasn’t himself. She asked what was bothering him and he said there was something he really wanted to know – he wanted to know exactly how he was going to die. Karyn also wanted to know, so when Lori arrived, she asked the all important question.

Lori responded honestly and gently. She described the dying process step-by-step. When she was done, both Karyn and Phil were at peace. According to Karyn, this was one of the most valuable things Lori did for them. “You aren’t frightened when you know the signs.”

Phil’s condition progressed just as Lori described it. Karyn and Phil were now prepared for what was ahead, and were able to shift their attention to the work Phil had left to do.

Important Work Remains

The most pressing issue was moving. Their current lake cabin wasn’t winterized, and winter wouldn’t wait. So, “by the grace of God,” they found a new lake home that was perfect for them. As soon as they moved in, Phil asked Karyn to get the house decorated; he wanted to see it with her personal touch. Although decorating wasn’t high on Karyn’s priority list, she enlisted their daughter’s help and got to it. Once complete, Phil felt content in their new home.

Next was the car. Phil felt it was time. He wanted to ensure they buy one that would be safe and reliable for years to come. So, off to the dealership they went. Phil took a ride in the new car and then proceeded to educate Karyn on the inner workings of the vehicle. Karyn smiles when thinking back on this memory. Even though she wanted to tell Phil that she was fully capable of reading the car manual, she understood this was something Phil needed to do for her.

With home and car settled, Phil’s next goal was to spend as much time as possible connecting with his friends and family. Friendships were very important to Phil, so they made arrangements to share a meal with a different friend each day. Karyn cheerfully explains that she gained a lot of weight that summer… but she appreciated that Lori helped to keep Phil comfortable enough to enjoy these special meals.

A Peaceful Passing

In his final days, Phil was very reflective of his life. He was convinced he had lived the best life possible. Phil peacefully passed away in his own home, following a wonderful steak dinner on his patio the night before. He was surrounded by friends and loved ones. His disease progressed exactly as Lori had described it. He wasn’t afraid. He wasn’t in pain. He was at peace. Phil’s life was in order and his wishes were fulfilled.

The Circle of Life

Several months following her death, Sheri is deeply missed, but neither of her children, Zach and Rachael, feels a moment of remorse or regret about how she passed away.

Zach greets his sister Rachael with a big hug. They have just arrived at Oak Crossing, the nursing home in Detroit Lakes where their 53-year-old mother, Sheri, worked and eventually lived during the last few months of her life.

It’s been six months since their mother passed away from brain cancer, and these young adults have taken a break from their jobs, their families and dealing with their mother’s affairs to share her end-of-life story.

The story of Sheri’s illness began over 20 years ago. Zach was a second grader and Rachael was only 5. Sheri was experiencing terrible headaches and discovered the cause was an inoperable brain tumor. She began her fight against cancer immediately.

Zach describes her treatments as “prayer and radiation therapy”. Sheri prayed that she would be allowed to live and raise her children, asking God to just let her get them through high school.

Sheri survived the cancer and a divorce from her high-school sweetheart. As a cancer-free, single mother, she carved a new path for her life and got a job at Oak Crossing, first as a certified nursing assistant to get her through nursing school, and then as a nurse after completing her degree.

Most importantly, she treasured this time with her family, offering forgiveness, kindness and love to everyone who touched her life. She would smile at complete strangers just to brighten their day. Her children remained the light of her life. Zach remembers how a look of sheer happiness would cross her face when either he or Rachael would walk in the room.

Twenty years after her first battle, the headaches returned. This time, the news from Mayo was promising. The tumor was operable, and surgery was scheduled in Fargo. Sheri insisted it be in Fargo, closer to her family so they wouldn’t have to travel to visit her.

During the surgery, the doctors discovered the cancer was deep within the brain tissue. Although the tumor was removed, her cancer remained.

Sheri bravely battled cancer again, but as Zach and Rachael say, “she knew.” Her illness caused peripheral vision loss and lapses in short-term memory, which her 3-year-old grandson would brush off as “Grandma being silly.”

Through it all, Zach and Rachael did everything they could to support her. Rachael and her fiancé moved in with Sheri to help. Even though her health was failing and she had to quit her job, Sheri kept her spirits up, often joking and lifting others’ spirits up as well.

Rachael smiles when she tells about her mom saying that she messed up when she made her deal with God. She should have asked to stick around to watch her grandchildren grow up, not just her children.

Eventually Sheri went back to Oak Crossing—but not as a nurse. This time, she was a patient. She was given the “Circle of Life” room, a larger room that would allow for all of her visitors to be comfortable. It was here, with the loving support of her family, her Oak Crossing colleagues and her Hospice team that she spent the remainder of her days.

Her family spent this time visiting, sharing memories and simply enjoying her company. Her Oak Crossing colleagues spoiled her and provided her with the daily cares she needed, while her Hospice team ensured she was comfortable until the end.

Zach and Rachael describe the care she received from both Oak Crossing and Hospice as a gift. To know their mom had such special and loving care eased their burden. Sheri is deeply missed today, several months following her death, but neither Zach nor Rachael feels a moment of remorse or regret about how she passed away. Rather than feel sorry for themselves, they both simply appreciate the time they had with her.

As they leave the nursing home, Zach and Rachael embrace, their love and respect for each other is visible in their words and actions as they part. Zach asks Rachael, “Do you want to go clean out Mom’s kitchen tonight?” Rachael responds, “Do you?” Zach replies, “No.” They smile at each other, decide to do it later in the week, and then head off to spend time with their families.

They aren’t bitter about the extra burden they have been given; they are simply responsible, beautiful people following in their mother’s footsteps. What a rich and lasting legacy for a mom to leave her children.

Difficult Decisions. The Right Choices.

“Sometimes the right choices come after a nudge from someone on the outside looking in.”

The most difficult decisions a family faces surround the health care of a loved one who is seriously ill. Often times we become so immersed in our issues and their care that we cannot see what is later found to be so obvious. Sometimes the right choices come after a nudge from someone on the outside looking in. Such was the experience for Marlene Christenson and her family as they journeyed with her husband, Boyd, through his struggle with Alzheimer’s.

Difficult Decisions

Boyd was diagnosed in September 2004. As they held hands in their doctor’s office, Boyd assured Marlene that they would be alright. Through some difficult decisions that would result in the right choices for them, they found that to be true. But not without wonderful support, excellent care and a remarkable attitude on the part of Boyd and their entire family. Together they determined that they were now in the “business of making memories.”

There were several difficult decisions that would follow and one of the most significant for Marlene would be when Boyd could no longer live with her. She asked herself, “How long can I care for him at home?” and “How will I know when that time is up?”

She found those answers on a cold winter’s day in February of 2009. Boyd was standing in the doorway of their den, undecided, confused and bewildered – he was experiencing what the medical profession calls a ‘psychotic incident’. A subsequent trip to the hospital resulted in a doctor’s firm declaration that he could not go back home. The decision was being made for her and she knew it was the right one for them.

The Right Choices

Marlene and her family researched local care facilities and chose one close to their home that had a memory care unit. Boyd understood what the decision meant, and with some more thought and discussion, he accepted the move. They both knew he would be safe and receive excellent care. For them, this was the right choice.

They continued making memories. They went for long walks, had family and friends for dinner back at their home and took lots and lots of pictures to document this journey. One day they even “entertained” at the care facility by spontaneously dancing to some background music.

They also engaged in dozens of games of double solitaire. “There was never a winner, but it was one thing I could do to keep him engaged,” said Marlene. It was also a way for her to measure his decline.

The progression of Alzheimer’s is like a slippery slope heading towards a steep ravine. The challenge is in knowing when one might reach the ravine. For Boyd, it was in October of 2009. He changed drastically, needed more care and became less responsive.

In the midst of this was a long-planned and much anticipated family trip to Peru, a country near and dear to their hearts. Although it wasn’t part of the plan for Boyd to make the trip, it also wasn’t a part of the plan for him to have an unexpected hospital stay just days before the family’s departure. The physician tending to Boyd recommended hospice care. This was the next difficult decision, and Marlene knew hospice was the right choice.

At the physician’s encouragement, supported by the care facility where Boyd lived and the hospice staff, the family took the trip knowing that the many layers of care he was receiving meant he was in the best of hands. Another difficult decision made with the support of others.

The Friday before Boyd died, the family crowded into his room at the care facility. Shoulder-to-shoulder they kept vigil. His daughter left the room to update her husband who was on the way with their children. As she explained the setting and the situation, he asked, “Has anyone thought of bringing him home?” They were longing for more privacy, space and the comfort of familiar surroundings. This was actually the easiest decision and it turned out to be their very best choice.

Within hours, Boyd was home, comfortably settled in a hospital bed in the family room, in front of the fireplace. The family formed a cocoon around him, shared stories by daylight and candlelight, with his favorite music playing in the background. And as a family they chose to provide the final comfort cares to their father, grandfather, father-in-law, son-in-law and husband as he entered the last moments of his life.

Boyd died at home on Tuesday, December 22, 2009. As the outside world awaited celebration of the birth of the Christ child, the Christenson family awaited the celebration of Boyd’s relief from his arduous journey. The peace, tranquility and sacredness of that time were further affirmation that they had made all the right choices when faced with the difficult decisions. And they didn’t need to make them alone.

King for the Day, Everyday

Don may no longer be king of the road, but with Hospice of the Red River Valley and Home Sweet Home, he feels like he is “king for the day, everyday.”

After driving truck nearly two million miles over the course of 17 years, Don Brantner was king of the open road. He loved what he did, and took pleasure in meeting – and lending a hand to – the new friends he met along the way. So much so that after his daughters were married and had families of their own, Don would often volunteer to drive on the holidays, making it possible for other drivers to be home with their families. Some of his most treasured memories happened during these holidays on the road.

Don was “shooting the bull with some guys” at a truck stop in Black River Falls, Wisconsin, when he heard someone gasping. He looked over to find the man at the next table choking. Don had first-aid training and knew exactly what to do. “First, I said a little prayer; dear God, give me all the strength you can give me,” Don says. “Then, I got up and went behind the man…I should have stood him up, but there just wasn’t time. Instead, I kneeled behind him and started doing the Heimlich maneuver.”

As he shares his story, Don’s hands form a fist to illustrate his actions that day, “It took three good, hard pulls…I used all my strength, but I saved him.” Don gets emotional as he recalls the impact he made that day. He takes a moment to compose himself and then continues. “I never did get his name…I wish I would have gotten his name.”

Christmas Day

At another truck stop, this time in Gary, Indiana, a young man approached Don and asked if he had a couple of bucks for coffee and sandwich. Don took one look at the man and could tell it had been too long since he had a good meal so he dug out some cash and answered him, “Nope, but I do have 20 bucks for a big breakfast.”

The young man was so grateful that he broke down in tears. Twenty minutes later, Don saw that same young man sitting at the truck stop café with a plate heaping full of food.

Christmas Evening

Driving through Montana, another young man was looking for help. This time, the plea comes across Don’s CB radio. The man, or “kid” as Don calls him, was in Montana and looking for a ride to Olympia, Washington, where his mother was having surgery the next morning. Don radioed back “Hey bud, I got a ride to North Bend, Washington for you. That will get ya’ close.” The kid gladly accepted, so Don made a short detour to pick him up at a nearby gas station. Don appreciated the company and, as always, was happy to help.

As they neared North Bend, Don told him, “Time to get on the mike kid, let’s keep this thing going.” Shortly after putting out the radio request, he received a response back from a trucker that was headed right past the hospital in Olympia. Thanks to Don and several other generous souls along the way, the kid made it in time for his mother’s surgery.

Don’t Turn

Years later, the tables have turned and Don is now the one in need of help. He has colon cancer, diabetes and heart disease. For a man that is used to setting his own course, it has been difficult to accept direction from others. His doctor and his family suggested hospice care. However, Don – like so many others – believed hospice was “where you go to die.” In fact, he only made the call after his daughter Laura, who lives in Seattle, insisted, telling him she was going to get on the next airplane to Fargo if he didn’t get signed up for hospice care. Although he still wasn’t convinced, he didn’t want Laura to spend her money on last-minute airfare.

When his Hospice nurse, Katie, came for her first visit she found him leaning against his kitchen counter, visibly in pain, in a home that had been neglected as he battled his health issues. Don describes this time as “tough going” and Katie agrees. “It wasn’t easy at first,” she recalls. “We (the patient care team) had to work hard to gain his trust.”

While Katie worked on managing his pain, the nursing assistants came by to help Don with his daily cares and the neglected housework. In an effort to get Don’s pain under control, he was checked into the hospital for a short time. While he was there, Katie and Cathy, his Hospice social worker, used the time to find a place where Don could be more comfortable. They found the perfect fit in Home Sweet Home, a personal home that is open to those in need of a little extra care in a beautiful setting just a few miles from town. They took pictures of the facility, and brought the photos to the hospital in an effort to plant the seed. After learning that there would be space for his car, Don agreed to give it a try.

Despite his initial reservations about hospice care and moving, Don’s pain is now under control and he is thriving in his new home at Home Sweet Home. In July he hosted his entire family, including his Hospice team, for a picnic in his big backyard. This simple pleasure was significant, given that he has never had a place big enough for a picnic before. Don chuckles as he describes the fun he had watching his eight grandsons running around the big yard. “After raising three girls, I am not used to seeing all those boys around.”

Three months after making the move, Don wakes in the comfort of his home surrounded by new friends, and the reassurance that his Hospice family is just a phone call away. Don is amazed by the change a few short months has made in his life, “It’s a totally different atmosphere. There is peace and serenity here,” he says. Don may no longer be king of the road, but with Hospice of the Red River Valley and Home Sweet Home, he feels like he is “king for the day, everyday.”

A “Time Out” from Cancer

“Treating families to ‘wow’ experiences, giving children who will lose their mom or dad to cancer a ‘time-out’ to create indispensable memories as a family…while they can.”
 -The Jack and Jill Late Stage Cancer Foundation

“Yeah, right.” That was Gaylene Smith’s initial reaction after hearing that the Jack and Jill Late Stage Cancer Foundation had selected her and her family as recipients of an all-expense paid vacation to the destination of their choice. “I was shocked,” Gaylene says. It’s a fitting reaction, given that the Jack and Jill Foundation is a national organization that received 300 requests the same day the Smith’s story was submitted for consideration.

Michelle, the Hospice social worker who submitted their story, believes it was the combination of a deserving family and perfect timing. First, there’s the family. Gaylene, a beautiful wife and mother of three with crystal blue eyes and a bright smile, is in the final stages of colon cancer.

Randy, her husband, is right by her side supporting her and their three daughters, Kayla (19), Kristie (16) and Katie (12). The family’s focus over the last year has been on Gaylene’s battle with cancer there hasn’t been time for family vacations.

As for the perfect timing, the Smith family has Michelle to thank for that. While Michelle was checking emails from home one morning, the Today Show was on in the background. Her ears perked up when she heard the founders of the Jack and Jill Foundation describing their work this way: “Treating families to ‘wow’ experiences, giving children who will lose their mom or dad to cancer a ‘time-out’ to create indispensable memories as a family…while they can.”

Michelle stopped what she was doing and immediately went to the Jack and Jill Foundation website to determine how to submit the Smith family’s story for consideration.

She didn’t hear back initially and, given the national publicity the foundation had received on the Today Show, Michelle doubted she would. However, two days later she received a voicemail from Heidi, a representative from the Jack and Jill Foundation. Michelle immediately called her back. After a great conversation, Heidi told her, “You know Michelle, I am going to help your patient.”

Michelle was thrilled and a little skeptical, given that they still had to get all the paperwork submitted within a couple of days. Setting her doubt aside, she got to work. First, she called Gaylene and gave her an update, along with a word of caution, “Don’t get your hopes up, it’s a long shot.” She then called Gaylene’s doctor’s office. The nurse informed her that the doctor was leaving for vacation the very next day, but told her if Michelle could get the paperwork to her right away, she would be sure to have the doctor complete it before leaving. The form was 12 pages long, but amazingly Michelle did receive everything back before the end of the day.

Four days after submitting the paperwork, Michelle received a call from Randy letting her know that the family had been selected. Michelle was so thrilled, she hung up the phone and exclaimed to everyone within earshot, “They are going to the Bahamas!”

Once the immediate shock wore off, the Smith family got busy packing and also made time for a little shopping. “You’ve got to have new clothes for vacation,” Gaylene says, sharing a smile with her daughter Kayla. The Foundation paid for everything, including their first-class round trip tickets, hotel stay and meals.

On top of that, the Nassau Minister of Tourism sent a representative to take them to lunch one day, and also provided them with complimentary passes to the infamous Atlantis island resort. Gaylene was so impressed with their hospitality and kindness. “Everyone was so nice and everything was free; well, except the shopping,” she says.

Randy went on to explain that when they arrived at the hotel, they had oxygen delivered to keep Gaylene comfortable during their stay. The last day of their vacation, Randy went to the front desk to pay for it and was told that it had been covered by the hotel. In addition, Kodak also gave them a camera and is providing them with a memory book of the photos taken on their vacation.

The amazing generosity shown to the Smith family was not lost on them. They are grateful to everyone who had a part in making their trip to the Bahamas happen. From the “crazy good” entertainment to the lasting memories they created during this precious time together, it is clear that this trip was just what they needed. And, as Michelle will tell you, it’s just what they deserved!

 

Remembering Debbie

Debbie Gabel Memorial Cancer RideEach July, area motorcycle riders, supporters and community members join together in Valley City, N.D., for the annual Debbie Gabel Memorial Motorcycle Run. Event founder Rocky Gabel, who owns Gabel Masonry Construction in Valley City, said the motivation for the event is three-fold: to memorialize his wife, Debbie, to educate people about the dangers of cancer and to help people locally.

After Rocky lost his wife of 33 years, Debbie, to ovarian cancer in early 2009, he became determined to channel his grief into helping others – and to preserving Debbie’s name and legacy in their community.

Rocky and Debbie had not been long-time motorcycle riders. “In fact, it wasn’t until Debbie read an article suggesting, ‘Everyone should go to Sturgis at least one time in their lives,’ that we even considered it,” Rocky says. The Gabels made the trip to Sturgis, S.D., for the legendary bike rally in 2006, and it wasn’t long afterward that they each purchased a motorcycle and began riding.

Only a year earlier, Debbie had been diagnosed with ovarian cancer. As Debbie grew weaker from the disease toward the end of her battle, she often rode double with Rocky instead of on her own bike, but still they rode. In December of 2008, after undergoing three years of aggressive treatment, the Gabels received the devastating news that Debbie’s prognosis was limited. She spent her last weeks at home, cared for by Rocky until the very end, with the support of Hospice of the Red River Valley. Debbie Gabel passed away January 9, 2009, at the age of 52.

After her death, Rocky struggled with how to remember his wife in a way that impacted people in a meaningful and memorable way. “I wanted to increase awareness of ovarian and other reproductive cancers and educate people about early detection, in a way that honored and remembered Debbie,” he says. “A motorcycle run seemed like the perfect fit.” The first Debbie Gabel Memorial Motorcycle Run was held in July 2009. More than 50 bikers participated.

Rocky chose Hospice of the Red River Valley as a primary recipient of event proceeds. He chose Hospice not only because of the vital support and care they provided for him and his wife, but also because he knew the dollars would be invested locally in caring for others.

Following the 2009 event, Rocky formed a non-profit organization, Thundering Saints, which helped to make the 2010 event even more impactful. More than 150 riders participated.

Supper at the VFW, a silent auction and a street dance round out the event’s festivities each year. A highlight in recent years has been the raffle drawing, with the winner taking home a new Harley Davidson Heritage as the top prize.

Thanks to the growing number of participants each year, Rocky is confident the event will continue to honor Debbie well into the future.